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There is a shot in “Voices from the Shadows” that shows a man in his twenties lying forlornly in bed.
Like the rest of the documentary, it exists to illustrate the miserable effects of the illness Myalgic Encephalomyelitis, or ME, which is often unhelpfully called Chronic Fatigue Syndrome.
There is a detail in the shot that haunts me. The man has a beard, of a length and thickness unusual, and unsuitable, for someone his age. He has the beard because he is unable to stand up long enough to shave and because having his parents, or a nurse, sit and shave him as he lays in bed is messy, uncomfortable and undignified. Every morning he thinks about shaving but his reserves of energy are so limited that he has to choose between being able to go to the bathroom because he wants to shave or, later in the day, being able to go to the bathroom because he needs to go to the bathroom.
December 14, 2012